Robyn is a gifted 17-year-old student and musician who focuses on keeping herself healthy by managing her chronic disease cystic fibrosis, while still pursuing the activities she loves. Diagnosed with CF since birth, Robyn has learned to work around the limitations of the disease with lots of determination and the help of her family and CF care team.

Robyn has always been a fighter. For 15 years, Robyn endured tube feedings, which are a way of providing nutritional support with a nutrient dense liquid delivered through a tube directly into the stomach. Robyn accomplished a major personal victory when she was able to eat enough food orally to be able to remove her gastronomy feed tube, which happened in January of this year!

In addition to the time-consuming CF regimen that she undertakes daily, Robyn stays very busy with school, music and community service. She began playing the violin in first grade and continues to play in her high school’s orchestra. Robyn is also heavily involved in community service, working on diverse programs, including “Nothing But Nets,” an organization to help prevent the spread of malaria, and volunteering at her local battered woman’s shelter. Next fall, Robyn plans on attending the University of California, Davis where she will major in nutritional science.

Heroes of Hope Living with CF recognizes individuals with cystic fibrosis (CF) who live full and productive lives while managing their healthcare needs. To date, Heroes of Hope has honored more than 48 inspiring individuals with CF in over 35 states. Heroes of Hope recipients inspire others through their outstanding accomplishments, dedication to health maintenance and contributions to their communities.

Learn more about Robyn

Click here to access Robyn’s personal Heroes of Hope Web page. www.heroesofhope.com