Hey ya’ll!

What do a Bill, a Margarete, an Eric, a Paloma and two blonde Emily’s have in common? Well I’ll tell ya. We all have cystic fibrosis or love someone deeply with CF and we are featured in a multimedia story called Patient Voices featured on The New York Times website. Oh and one of those blondes just happens to be me! Everyone with CF has a voice but here are six of us telling our stories. Speaking of voices, two different customers on two separate occasions at work yesterday looooved my voice..one said “I like your voice, it’s interesting and very different!” Another liked my “accent” and asked where I got that. I told him Detroit baby, Detroit. What they don’t know is that I pay money for this voice. A lot of money… thanks TOBI!

June 10, 2009

Patient Voices: Cystic Fibrosis

Less than 20 years ago the median life span for people with cystic fibrosis was 29. Today, with new treatments and earlier diagnosis, those with the inherited disorder are living longer, more fulfilling lives. But with complicated, time-consuming treatments and frequent lung infections, life with cystic fibrosis can be difficult. Six men and women speak about their experiences.

Enjoy and Rock CF!

Emily