Registration for the Rock CF Half Marathon will open October 1!! Stay tuned for the launch of the official website for the race: www.OutRunCF.com.
We are currently seeking sponsors of all levels to help get this race off the ground. If you are interest please email me emily@outruncf.com today!
Breathe Deep. Run Hard. Rock CF.
Em
Hey there fellow runners!
Now is your chance to run and Rock CF at the same time!! Hopefully you are in the middle of training for the full or half marathon that you’ll run in Detroit on October 17. If so, come out and run for team Rock CF! You can run the full, Half, Relay or 5K, raise some dough for Rock CF and you will get a special edition Rock CF shirt to wear during the race!
Register for the races here And once you do send an email to me emily@letsrockcf.org so we can figure out your tee shirt size and more details.
Breathe Deep. Run Hard. Rock CF.
Emily
ATTENTION NON RUNNERS: If you want to help out on race day you can do that too. Rock CF is partnering up with the lululemon Somerset store to man a water station and we NEED your help! Email me if you want in: emily@letsrockcf.org
You in?
Now is your chance to win a trip to San Diego for the Mauli Ola Foundation’s Surf Experience Days!! If you’ve ever dreamed of hanging ten in San Diego with some pro surfers enter this contest! You must have CF and be at least 18 years old…click on the CF logo below to see all of the rules.
The CFvoice Surfing Event video competition is brought to you by Novartis Pharmaceuticals Corporation.
Here is my video…what I wouldn’t do to win this contest!
Be well and Rock CF,
Em
We made it!!!
After an awesome day marching on the Hill raising CF awareness and doing some “lobbying” with my new buddies, we hit the road early this morning from the Lincoln Memorial to kick off the City to City Ride!!
Yesterday was just unbelievable. Meeting with such important people that can change and enrich our lives was so powerful. Even cooler was being able to be in these meeting with teens who have siblings with CF. After the march my buddy Will and I set up some drums and amps in the Mexican restaurant in the hotel and got ready for a remarkably thrilling rock and roll show. Hits from Journey, Zep, The Stones, Chili Peppers and Miley Cyrus were delivered..I’ve officially lost my voice and I am old!!
Get ready for the next 4 days of our adventure! We are loving this trail so far!
Rock CF,
Emily
Have you ever thought about getting your hair cut on a tripped out tour bus? Your dream will become a reality as the TIGI Rockaholic tour bus makes a stop at Bocci Salon in Sterling Heights.
A few awesome Detroit bands and DJ’s will be keeping you entertained outside. So come on out, get a trim, hear some of Detroit’s finest and have a good time..all while funding new research that is changing the lives of CF patients worldwide!
Unfortunately June 24 is the Day I will be marching on Capitol Hill about CF and then hitting the road to Pittsburgh on my bike. So I NEED all of my Rock CF supporters to help me out with this and represent for me!!!
Frankie D’Angelo is confirmed to play at the event so far…more bands and DJ’s will be announced asap!
Rock CF,
Emily
Rock CF has a YouTube channel!!
Be sure to surf on over and get your fill! When you become a subscriber you’ll be the first to know what craziness I am up to and what new fun things are happening with the Rock CF Foundation.
Here’s where you can keep in touch with me and the crew as we cycle from D.C. to Pittsburgh too.
Rock CF,
Em
http://www.active.com/donate/c2c2010
We are just over a month away from the 2010 City to City Ride from DC to Pittsburgh. So now it’s time to kick it into gear and start raising the much needed funds for Cystic Fibrosis. All DONATIONS made by clicking the pic or link above will go toward funding the research that is improving the quality of life for CF patients.
In order to make this ride actually happen though we need help. Because of my meds and treatments, camping along the 335 mile trail is not an option. Funding to help cover the costs of hotel rooms and food for the group is needed. So we are looking for Sponsors to maybe throw in some dough to help with these costs. Want to cover meals for 1 day? Or pay for hotel rooms for a night? Do you have granola bars or Gatorade that you’re willing to donate? Water bottles with your companies logo on them? GREAT! We will take all of the help we can get!
If you interested in helping out in any way please email me: emily@letsrockcf.org
Thanks and as always Rock CF,
Emily
Happy CF Awareness Month Ya’ll!! Please take a moment to check out some of my favorite CF things happening around the world!
Nothing to say except the CF Foundation is the reason that I am alive today. I owe them everything! Please visit the site to learn everything about CF and also donate to my Great Stides Team!! I LOVE you!
Check out Somer’s Love to Breathe site: “Love to Breathe was created so we could give hope to families with newly diagnosed children. I believe it is important to educate and raise awareness about CF whenever I can.” Read her blog, by some LTB jewelry and find some HOPE!
Just Let Me Breathe by Somer Love
My buddy Josh “Moterin” Mogren is the boss of this site! Fun blogs about life and also video’s with his new BFF Moganko. Want to laugh? Go HERE!
Stay connected with CF patients all over the map at Cystic Life. CL was created by my buddy Ronnie and his finace’ Mandi. Bringing us all together for support and fun! Register today and be in the now!
Breathe 4 Tomorrow was founded by thee Sarah Morris Pearson, an adult CF patient who wants to help the CF patients that are living!! Power of 1 Person.
Newly diagnosed CF family? I’ve got just the place for you! Head over to the Blooming Rose Foundation and check out what Kat, a CF mom, has going on. She can set you up to talk with CF patients and families all over the world on how to raise a CF child and how to thrive and fight on.
I’ll end with one of my absolute most favorite CF sites, CFVoice.com. CF Voice allows you to immerse yourself in the most positive, amazing, stories, videos and podcasts. Kids can play games with Zude, teens can get advice, adults can watch other adults talk about how they’re rocking and parents have a much needed resource for staying strong.
Please check out the BREATHE song event at CFVoice.com. It features my mermaid friend Rosie and Josh from Welcome To Joshland. Tess, a CF teen shows her pipes too!
Love to all of you and thank you for the continued support in my quest to rock cystic fibrosis so hard that CF WILL on day stand for Cure Found..we are close my friends, very close. Unfortunately we have lost some absolutely incredible CF friends this year. Very inspirational people who have changed lives for the good. Please continue to do what you are doing and take this month to tell others about cystic fibrosis.
Rock CF,
Em
The Just Let Me Breathe concert WILL NOT BE April 30!
Due to some recent developments, the show will be moved to a later date. Stay tuned for the new date!!
Rock CF,
Emily
