July30
Yo dudes!
Get your September issue of Runner’s World NOW!! Any store in your town that sells magazines, well a good selection, will have Runner’s World. Check it out! I picked up 4 copies tonight. It was hard but I left a few for others…
So I have a new goal..Let’s make this the biggest selling issue that Runner’s World has ever seen. You in?? If so go buy a copy now and tell 5 people to do the same. If you have a blog maybe post it on there.. All of this well help make some major awareness for Cystic Fibrosis!
ALSO if you want to get updates from Rock CF & Me send and email titles LIST to emily@letsrockcf.org.
BREATHE DEEP. RUN HARD. ROCK CF.
Emily
July29
It has happened…my dream to be in Runner’s World Magzine has come true! Two dreams in one year? What’s the other dream? Meeting my hero Ellen DeGeneres last year of course.
This is something that my running partner Kevin and I would talk about all the time on runs. He’d say “Emmmm you gotta get into Runner’s World somehow.” We did it Kev!
RW is my absolute #1 magazine of all time. Every month when it arrives on my door step it’s like Christmas. I tear it open and read it front to back…those who know me know that I usually just look at pictures in magazines..a.d.h.d!
Ok, so you can read the article by clicking the pic below or the RW logo above. Buuut..I suggest you wait until the new issue comes out next week to see the full page pic! (It’s the September issue that will be out in August).
Image by Scott Stewart
Runners’ Stories
FRESH AIR
Running helps a patient with cystic fibrosis clear her lungs and add years to her life.
By Nancy Averett
Nancy Averett is an awesome lady who I spent a few days with up here. Great writing Nancy!!
My goal is to make this the biggest selling issue of RW yet! Let the campaign begin!
Rock CF,
Emily
July26
New drugs for cystic fibrosis bring hope
More patients survive into adulthood, but they face new challenges
By Kristen Gerencher, MarketWatch
READ ARTICLE
May11
Rock CF has a YouTube channel!!
Be sure to surf on over and get your fill! When you become a subscriber you’ll be the first to know what craziness I am up to and what new fun things are happening with the Rock CF Foundation.
Here’s where you can keep in touch with me and the crew as we cycle from D.C. to Pittsburgh too.
Rock CF,
Em
March23
Photo courtesy of the Cystic Fibrosis Foundation
(Click to read full article)
“Frank Deford, chairman emeritus of the National Board of Trustees of the CF Foundation, presented Emily Schaller with theAlex Award for her hope and determination in the fight against CF.”- Courtesy of the CF Foundation
Last week, along with my mama, I attended the CFF’s Volunteer Leadership Initiative in Arlington, VA. Much to my surprise, at the big dinner I was honored with The Alex Award by the one and only Mr. Frank Deford. You may know him as the author of Alex:Life of a Child. This was made into a made for TV movie in the 80’s. Everyone in my family knew about that I was getting this award and so did the whole Metro Detroit CF Chapter. They got me! Totally surprised and that just made the evening more special. Alex’s spirit continues to live on very strong in the CF community. This is the biggest honor I have ever received. Thank you CFF and The Deford Family.
Aside from the amazing honor, my mom and I were thrilled to be invited to this annual event where the key and focus is on the volunteers. There were roundtables with ideas on how to grow events & information about new events. A lot of information was shared and we all left very inspired and ready to Rock CF! It was also a great chance to meet other CF families and the great people who work for the CF Foundation.
Dr. Beall gave a rousing speech focusing on VX-770, VX-809, Cayston and the other promising drugs being developed right now. If that didn’t fire us all up, what could? Rich Mattingley kept the positive energy flowing with another speech. Finally Dr. Preston Campbell gave the State of Science address which showed us all exactly where we are right now and where we are heading. Believe me when I say that we are going to be celebrating some big milestones in the near future.
The whole weekend blew my mind. I couldn’t be more fired up and ready for the Just Let Me Breathe concert, City to City Ride 2010 and a few new events I have up my sleeve! An announcement with those should be coming soon!
I’ll say it again: Let’s rock cystic fibrosis so hard that CF will one day stand for Cure Found!
Rock CF,
Emily
March4
Today I met up with my dear friends Jeremy and Shannon for the Detroit portion of the I Rock CF video shoot. Jeremy has been one of my biggest supporters for years and you may know him from my favorite bands Whitey Morgan & the 78’s and South Normal. Shannon and I have been friends for years and you may know her from the Mojo in the Morning show on 95.5. Jeremy’s lovely wife Liz came along to catch this session in stills while Ryan captured us in real time!
Here’s a sneak peak for what’s set to pop up on May 1- the start of CF Awareness Month:
Rock CF,
Em
December31
Check out this “Where Are They Now?” feature from the New York Times. This year I was part of both the Running Voices and Voices of Cystic Fibrosis feature for Tara Parker-Pope’s Well Blog. Here is a little end of year recap that features myself and two others! What a great nightcap for 2009.
December 31, 2009, 10:34 am
Patient Voices: Where Are They Now?
By KAREN BARROW
(Click on the pic to read the whole article!)
____________________________________________________________________________________________________________
This has definitely been one of the absolute most exciting years of my life! My brother Adam and sister in law Marcy gave birth to the most beautiful baby girl ever, Kacey Emily Schaller. She is the light of my life and I love her to pieces. For sure the best thing of 2009.
I saw the county on two wheels. From Detroit to Chicago with four friends on our bicycles. Then from Chicago to Burbank, CA on a Vespa where I ended up at a taping of The Ellen DeGeneres show. My dream came true as my hero and idol, Ellen, came up to me during commercial breaks to talk to me and give me some good words and Joe Perry’s guitar pick. Read all about that on my Emily to Ellen section of the site.
The E2E trip took me through small towns and big cities. I met life long friends and saw friends both old and new all across the map. Lululemon Athletica was more than gracious in every city that we met and I am thankful for their support on my mission to Rock CF! Quality time with my dad and uncle was unmeasurable too.
This year was chock full of set backs, from injuries and other things, but one thing my brother Jason told me is to “Never take NO for an answer!” I didn’t and every time a lemon hit me this year, I made the best lemonade possible! And even sold it!
Right now I’m on day 10 of the Vertex VX-770 Clinical Trial and I have a really good feeling that I am getting the real drug and not the placebo. My cough is almost obsolete and there is barely any of that crazy thick mucus in my lungs. My salty sweat seems less salty too…?!
Unfortunately the CF community said goodbye to too many friends and loved ones. What a tough fall and winter season…I just know that all of my CF buddies are “Breathing Easy” now and not struggling. For you all though (especially Mel) I am running my first Full Marathon. Every step is for you and of course everyone else living with CF now. We will beat this thing…I know we will. Until we do though, we need to keep kicking ass and taking names.
To a happy, healthy and successful 2010.
Rock CF,
Em
November24
First off, click the link below and it will take you to this New York Times article:
Running Past Illness
By TARA PARKER-POPE
I came across this today while surfing the NY Times site! It was from October 6, the day I arrived in Burbank..Crazy huh? Check it out!
Today was 90 minutes of cross training..I wanted to get some big time burn so I rode the trainer for 90 the whole 90 minutes. I watched back to back Ellen episodes to keep my mind busy and me entertained. It worked out well and I definitely got some good quality riding in.
We’ve got the big Turkey Trot (10K) on Thursday and I’m pumped for that. Tomorrow I’m rocking a 5am 5 miler with Kevin to give me the rest of the day to get ready for the race Thursday am..who says I can’t crawl into bed after I run tomorrow, I’m doing it!
Have a great day and Rock CF,
Em
November2
Before the E2E4CF ride I recorded a segment for A Wider World, a PBS show focused on Ablities. The show will air in the Detroit area on November 17 at 5:30pm. Set your DVR or Tivo! When searching for the program type in “Wider World” and it will come up.
Below are the other cities in Michigan and around the US where the program is aired. The schedule is a little tricky…if your area airs A Wider World on Wednesdays the show will air November 11. After Wednesday it will air the day that is is scheduled in your town. So basically the show will air starting November 11 and play in your area the day of the week is says, but only after Nov 11…check your local PBS website if you are as confused as I am haha!
Call Letters City Day Time
KCSM San Francisco Saturday 1:30 PM
KRCB San Francisco Thursday 11:00 AM
KTEH San Francisco Sunday 6:00 AM
WTVS Detroit Tuesday 5:30 PM
KBDI Denver Thursday 11:30 PM
KVIE66 Sacramento Monday 7:30 AM
WIPB Indianapolis Friday 2:30 PM
WCMU Flint-Saginaw-Bay City Tuesday 1:00 PM
WDCP Flint-Saginaw-Bay City Friday 6:00 AM
WDCQ Flint-Saginaw-Bay City Saturday 6:00 AM
WFUM Flint-Saginaw-Bay City Sunday 11:30 AM
WGTE Toledo Monday 1:30 AM
WCMYII Syracuse Wednesday 11:30AM
WEIU Champaign & Springfield-Decatur Saturday 4:30 PM
WKAR Lansing Thursday 12:30PM
KAR2 Lansing Friday 9:30 PM
WKARC Lansing Friday 12:30 PM
WCMV Traverse City-Cadillac Tuesday 1:00 PM
WCMW Traverse City-Cadillac Tuesday 1:00 PM
KCAH Monterey-Salinas Sunday 6:00 AM
WNMU Marquette Tuesday 5:00 PM
WCML Alpena Tuesday 1:00 PM
KRWG Las Cruces NM Sunday 1 :00 PM
UNC TV State of North Carolina
**Also carried in Canada, Cayman Islands, Iceland and Scandinavian countries on cable/satellite.
Rock CF,
Emily
