My good friends over at Pulmozyme are launching a new program today! The program will assist cystic fibrosis patients and families with their monthly co pays for Pulmozyme, one of my favorite inhaled drugs that allows me to be able to run and ride.

This could not come at a better time for me. I’m in between primary insurances and my head is spinning because my last bill for CF meds was $10,495! Of course my incredible insurance covers most of that but right now that wouldn’t be the case. It’s because of programs like this one from Pulmozyme and the program from TOBI that CF families are able to get the necessary meds that we need!

Breathe Deep. Run Hard. Rock CF.

Em

We are currently seeking sponsors of all levels to help get this race off the ground. If you are interest please email me emily@outruncf.com today!

Breathe Deep. Run Hard. Rock CF.

Em

Today’s Lunch: Em’s Super Sassy Nacho Mama’s

Grab a handful of tortilla Chips- Garden Fresh will do just fine

-Top with satueed onion & zucchini

- Add cubed avocado and fresh red and yellow tomatoes from the garden

- Cook up some black beans in mexican spices and thrown them on board

- Finally top off with a few scoops of your favorite salsa. Today was Michigan Cherry Salsa

- And always serve lunch with a nice portion of fresh fruit!

YUM!

Dinner Tiome: Homemade Sweet Potato Whole Wheat Gnocchi with Baby portobello mushroom, onion, spinach sauteed in olive oil.

Topped with a dash of rosemary and parmesan cheese. Of course a sliced Roma tomato from the back yard completes this tasty dish.

I got the Gnocchi recipe from the September issue of Bicycling Magazine..I just subbed sweet potatoes and whole wheat flour in for added nutrition. I was pleasantly surprised with how the gnocchi turned out because I wasn’t sure what the consistency of the dough should be. Once I tossed them into the boiling water and saw them float to the top, I knew my little dough pillows were a success!

Eat well,

Em

(meine Fruhstuck!) That egg is a challenge!

When you meet another person with CF it is such a cool and surreal moment. An instant connection is usually made because we share so much and it is just cool to be able to talk in CF & hospital language to someone who knows!

Let me say that I felt mini when I was with Piper, she is tall!! CF patients aren’t really known for their height but she slipped through the cracks. My daddy is 6′7” but I didn’t get any of that height. In the pic above I am standing on something and she is leaning down…so sad.

After breakfast we hopped a cab to Piper’s favorite and “best ice cream in the city…” GROM down in the village. I had a scoop of the Espress and the Hazlenut. Well she is right, that gelato is so delicious! You must try! We walked and talked and even checked out  the studio where she does gyrotonics, a form of total body exercise that blew my mind. I must do this!

On our adventure we talked about food of course. As you know we all have to eat a lot to maintain any sort of weight. It’s a common bond we have. She mentioned Indian food which immediately made my mouth water. So, naturally after we said our goodbyes I walked straight to Whole Foods and loaded up a box full of Indian food. Once I got back to my Uncle’s place I threw that food down as if I hadn’t eaten two breakfasts and gelato just a couple of hours ago. This is why I love you CF! I get to meet amazing friends and eat a lot.

Fun day and fun siesta. I need to move to NYC asap..it feels like home now.

Em

In case you don’t know these two sisters both have cystic fibrosis too. They are singers and so far are knocking the socks off of America on the show. They will need YOUR vote so please watch and then vote for them.

Thanks for Rocking CF girls!!

Em

Click the I Rock CF pic for a clip from the show!

Rock CF,

Em

Hey there fellow runners!

Now is your chance to  run and Rock CF at the same time!! Hopefully you are in the middle of training for the full or half marathon that you’ll run in Detroit on October 17. If so, come out and run for team Rock CF! You can run the full, Half, Relay or 5K, raise some dough for Rock CF and you will get a special edition Rock CF shirt to wear during the race!

Register for the races here And once you do send an email to me emily@letsrockcf.org so we can figure out your tee shirt size and more details.

Breathe Deep. Run Hard. Rock CF.

Emily

ATTENTION NON RUNNERS: If you want to help out on race day you can do that too. Rock CF is partnering up with the lululemon Somerset store to man a water station and we NEED your help! Email me if you want in: emily@letsrockcf.org

Yesterday I was invited to the Lululemon store in Somerset for a Fit Session..I tried on all of the new lulu running gear  (except for that running skirt..not gunna do it) and they got my opinion and thoughts on the rocking new stuff. I need to say something..those guys know something over there; they know how to make incredibly comfortable clothing that is guaranteed to make you look good and maybe even run faster. AND the new crops have spaces to hold GU!! The clothes are so soft and comfy that sometimes it feels like your naked, a very nice feature.

I’m very excited for some Rock CF and lululemon  tag teaming on some big Runs & Races coming up…we will also need YOUR help too!

Here is a shot from my session..notice I’m in the BREATHE dressing room:

Sideways again…uhhmm how can I fix that?

Rock CF,

Em

For any new people visiting, here is a brief run down from last years shenanigans!

Breathe Deep. Run Hard. Rock CF.

Emily

Mark your calendars. Find a training schedule and get on the ball.  People with Cystic Fibrosis who run will have their fees waived!

I guarantee this will be one of the coolest, most scenic and fastest races in Michigan. Stay tuned for registration details and much much more.

Of course we will be looking for all stages of sponsorships and volunteers to make this race possible. If you or your company have any interest please email me emily@letsrockcf.org.

Breathe Deep. Run Hard. Rock CF.

Emily