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Lace it up and bust a move!

May11

Hello there fellow Great Strides rockers!

It is that time again, the biggest month that we have to put all of our efforts on the line to fight cystic fibrosis for ourselves, our kids, our parents, our families and our friends.

Of course we have all been there; we write letters asking for money, have big and small events to fundraise, jar wars, jeans for genes days, give a dollar here or there for a pin up and just do what we can to raise money for our Great Strides walk team.

Well, I was thinking earlier today about the words “Great Strides” and I had an epiphany. The CF Foundation is truly the definition of Great Strides.  I just looked up Stride in the dictionary and found this -”To walk with long steps, especially in a hasty or vigorous way.” This is indeed what the CF Foundation has been doing for decades and most remarkably and excitingly, it is what they are doing right now to assure each and every person who is in this fight that they are on target to control and eventually cure cystic fibrosis. There has never been a more important time to give it all we’ve got. WE are the ones funding this research. Every single dollar counts, so let’s go! There are treatments and drugs that are within our reach and showing some amazing things in clinical trials. These treatments will change cystic fibrosis as we know it.

I hope you all are ready to rock cystic fibrosis and help us stride faster to “out run cystic fibrosis.”  I’ll be at a few walks around town so I hope to see you out there!!

Rock CF,

Emily Schaller

Jane Love’s to Breathe!

April28

The Love to Breathe Award

To give our race a special twist I decided we need to honor someone with a very awesome and special award. This will be an annual award that we give to some living with our without CF who is very active in the CF world and is making a difference. So I asked my gal Somer Love if she would like to team up with us for this award. Somer is an amazing painter and I thought her work would be the perfect award and give it that special touch. So Somer painted one of her signature pieces for the us and we used her phrase “Love to Breathe” as the title of the award.

Picking the winner this year was a little tough but I knew in my heart that my friend Jane Aula deserved this baby. Jane had a double lung transplant 2 years ago. She ran the 5K portion of the Rivers race and completed her first half marathon the week after. Jane’s zest for life is amazing and her positive attitude is contagious. It was also cool to see “Jane’s Posse” at our race this year; a group of friends and family from different states who gathered to help us Rock CF.

Here is a pic I took of Jane and the Love to Breathe Award at one of our coffee talks..

….. Click on the pic to visit Somer’s Blog!

Be well and enjoy spring!

Rock CF,

Emily

Honor your CF hero today!

April26

The Heroes of Hope™ Living with CF program is delighted to share with the CF community a new Heroes of Hope online nomination form. Now nominators can easily nominate the CF heroes in their life with this handy, online submission form. The form can be filled out athttp://bit.ly/dQx6C4. We all know heroes in the CF community who are deserving of this award, so nominate someone today!

“We are thrilled to launch our new online nomination process for the Heroes of Hope Living with CF Program,” said Heroes of Hope panel member and CF advocate Anabel Stenzel. “We hope this makes it easier for people to nominate their favorite CF hero. We look forward to receiving many more nominations so we can celebrate and recognize the gifts of many worthy people living well with cystic fibrosis.”

Heroes of Hope are individuals who serve as role models and portray hope to others with CF while proactively maintaining their health. They are motivated to live life to the fullest and do not let the limitations of CF get in their way of pursuing dreams. If you know someone with CF who fits this profile, we encourage you to submit an online application form today by clicking here!

Heroes of Hope™ Living with CF, sponsored by Genentech, recognizes individuals with cystic fibrosis (CF) who live full and productive lives while managing their healthcare needs. To date, Heroes of Hope has honored over 70 outstanding individuals with CF around the United States.  Heroes of Hope recipients inspire others through their outstanding accomplishments, dedication to health maintenance and contributions to their communities. To learn more about the program, go to www.HeroesofHope.com.

©2011 Genentech USA, Inc.  All rights reserved. This program is brought to you by

Genentech USA, Inc. and is intended for U.S. residents only.

Genentech USA, Inc. 1 DNA Way South San Francisco, CA 94080-4990

Rock CF shirt on NBC’s COMMUNITY!

April15

I am super pumped about this! Abed from NBC’s hit show Community rocked CF on the April 14 Competitive Wine Tasting episode!

I gotta give a huge shout out the Sabrina, the shows Wardrobe Supervisor. Thanks for helping us spread some worldwide awareness.

Rock CF,

EM

Spring has sprung!

April13

What’s up Rock CF’ers?

It has been a while since I’ve posted or updated because I have been going crazy! So far 2011 has been an incredibly busy and successful year for the Rock CF Foundation. Lot of travel and guest speaking gigs for me, and of course the Rock CF Rivers Half Marathon & 5K. We are proud to say that this event raised roughly $24,000. When we started our planning for the run last year we hope to just break even or raise a couple grand. Also we hoped for 300 runners but ended up with 1,540 signed up. This is amazing and I am still trying to wrap my mind around it!

The date for the 2012 Rock CF Rivers Half & 5K will be set soon…so stay tuned! Also look out for upcoming Rock CF events. A bike ride, golf outing? We think so..

Rock CF,

Emily

Thank you Rock CF Rivers Sponsors!

March28

I just want to send out a huge thank you to all of the 2011 Rock CF Rivers sponsors! Check them out!

5K start video!

March24

Buy Your Rivers Tech Shirt Now!

March24

So the Inaugural Rivers Half Marathon  & 5K was beyond a success!

1,450 Runners signed up and we raised around $20,000. Our original goal was 300-400 runners and to make a couple grand. I need to thank all of the runners, sponsors, donors, the whole island of Grosse Ile and most importantly the volunteers that made this race go off without a hitch (well not too  many!).

We do have some Women’s Long Sleeve Tech shirts left that I just put into the online store here. I also added coffee mugs..so get on over to the shop and buy yourself something nice!

Stay tuned for a full report with pics and some very cool highlights from race day.

Rock CF,

Emily

Rock CF’s Biggest Event Ever!

March12

Holy cow..when we first started planning this race we’d hoped to get 400 or so people. As of today we are over 1,030 runners between the half and 5K and are actually making money to fund research!! We project around 750 people to run our favorite half marathon course around the island and around 500′ish to rock the 5K. There will be a lot of CF friends running in both races too…running for their lives and  the other CF friends around the world.

You still have time to register. Click the link below to make it happen:

We still need volunteers to help out on race day. If you want in please email me emily@letsrockcf.

Rock CF,

Emily

New Hero of Hope *Kathleen Burke*

February21

This month’s Hero of Hope Living with CF, Kathleen Burke, age 20, is the kind of person who truly appreciates life and makes sure she takes nothing for granted. A junior theater major at Drew University, Kathleen loves being on stage and dreams about having one of her plays performed on Broadway.

To read the rest of Kathleen’s story, click HERE!

Know of a hero with CF? Nominate them today at www.HeroesofHope.com.

Rock CF,

emily

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